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We believe that
earlier diagnosis is crucial for achieving
better results for patients diagnosed with
oesophageal cancer, so raising public awareness
of possible warning signs is very important.
On Saturday 28 August 2010 we made a number of
media interviews supporting the concerns raised
by Cancer Research UK about the rise of
oesophageal cancer amongst men. You
may have to wait for a minute or two for these
to download:
Radio_David Kirby - Radio 5 7 35 28 Aug
2010.mp3
Radio_Larry Rees - Radio 5 8 36 28 Aug 2010.mp3
BBC News 24
We support the
Association of Upper GI Surgeons (AUGIS) in
their Awareness Campaign and have issued
the following press release:
For
patient stories, click
here
Mystery Rise in UK gullet cancer
Surgeons are worried about a rise in cancer of
the oesophagus, the muscular tube that takes
food from our throats to our stomachs.
Gullet cancer is
now the sixth most common cause of cancer deaths
in England and Wales, and every year it kills
6000 people. So it is a serious health
problem. The cancer affects men, usually over
40, more than women, but there is a striking
difference between how it has risen in this
country, but fallen in France. And the
worrying rise also contrasts with lower rates of
deaths from cancer in the nearby stomach and
bowel.
There are in fact
two types of oesophageal cancer, both of which
are linked to smoking and not eating enough
fruit and vegetables. Squamous cell carcinoma,
where the cells on the surface of the flesh are
affected, has excess alcohol consumption,
especially when smoking, as a risk factor;
adeno-carcinoma, which probably accounts for
nearly all the increase, tends to be associated
with obesity and heartburn, when acid from the
stomach damages the gullet. But some people
contract the disease who do not fall into these
categories.
The
Government’s Chief Medical Officer, Sir Liam
Donaldson, drew attention to the problem in his
annual report in 2008. He called for
research, and for better public information
about the risks.
The first
symptoms are normally food sticking in the
gullet, pain, or difficulty in swallowing.
Lots of people have heartburn or acid reflux and
only a tiny minority will have oesophageal
cancer, but it is important to consult a doctor
if these problems persist as a more serious
digestion problem might be the cause. If you
take indigestion tablets and the problem does
not improve after a month, you should see your
doctor again to discuss whether more
investigation is needed. Diagnosing
oesophageal cancer early is crucial to the
chances of successful treatment.
Hospitals can
check for gullet cancer by using a miniature
camera in a procedure called endoscopy that is
invariably completely painless. But endoscopy is
more complicated than, say, a screening test for
breast cancer. Doctors hope that an easier test
will become available in GP surgeries in the
next few years.
Treatment can
involve removing the affected part by surgery.
This is a big operation, but many people do very
well afterwards and enjoy a good quality of
life.
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About 1%
of the population suffer from Barrett’s
Oesophagus, which is not cancer. It is
caused when stomach acid changes the cells in
the oesophagus and there is a 1% risk of going
on to develop oesophageal cancer.
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Some medical
treatments might have a side effect of
slightly increasing the risk of oesophageal
cancer for some people. Some medicines for
heart attacks, for instance, might relax the
sphincter valve that normally prevents acid
rising from the stomach into the oesophagus.
And some drugs that combat helicobacter
pylori , bacteria that lead to stomach
ulcers, might also have a side-effect of
creating a rise in stomach acid.
So
doctors advise people to be aware of the
problem, to give up smoking, not to drink
excess alcohol, to eat a good diet including
plenty of fruit and vegetables and not to ignore
heartburn or swallowing problems.
Contact us
FAQ
Patient Stories:
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39-year-old
Maggie Haynes from Colchester was slim, fit,
a vegetarian and a non-smoker in September
2006 when she started to have trouble with
pain in her chest when she swallowed bread
or other 'doughy' type foods.
Initially she thought that the pain was due
to stress, but her husband persuaded her to
see her GP, who sent her to hospital for an
endoscopy which found a cancerous tumour
which would affect her liver a few months
afterwards if not treated.
Chemotherapy was followed by a successful
operation with keyhole surgery that removed
her oesophagus and part of her stomach.
After 9 months she was able to return to
work. Over two years since the
operation, Maggie has given up her job, but
enjoys life and counts her blessings,
especially that her cancer was diagnosed
early enough to be treated. |
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Andrew Price, from Clacton:
In the summer of 2007 I noticed that at
times when I swallowed food it seemed to get
stuck somewhere around my diaphragm. This
could even include when I drank a glass of
water, as well as any solid food. It gave me
the sort of sensation of having a piece of
bread stuck in the gullet. However I did not
worry too much about it. It was a bit
uncomfortable, but I put it down to the
indigestion which I had suffered from for
many years. Prior to being put on a drug
called Omeprazole I had also suffered with
quite bad acid reflux, often waking at night
with a very painful and unpleasant burning
sensation in my throat.
It was only in late November 2007 that I
went to my GP for a check up as I am a type
2 diabetic and mentioned to her that I had
this ‘blocky’ sensation when swallowing
food. At the time I had just had my 49th
birthday. She referred me for an endoscopy
which I had on 10th December
2007.
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Immediately
following this procedure, for which I had
been mildly sedated, the doctor along with
Upper GI Clinical Nurse Specialist Yvonne
Trillo at Colchester General, came to see me
to tell me that they had found cancer in my
oesophagus. This was a total shock to me as
I had never even heard of this type of
Cancer before. I was told that it was
treatable, probably by having surgery, which
would be major in nature.
Things started to move very quickly, with a
CT scan booked a few days later and soon
after Christmas I started a course of
Chemotherapy (Cisplatin and Fluorouracil or
5FU), which I had at the Mary Barron Suite
in Colchester, and then weekly at the
Jubilee Ward in Clacton Hospital. In all
cases the staff were fantastic, putting me
at ease and treating me in the very best way
possible. My Oncologist – Dr. Skaria from
Colchester General was excellent, and gave
me a very clear picture as to what was
happening, putting me totally at ease with
everything. There was also brilliant support
for my wife, who attended with me at all the
appointments and was helped and supported
throughout the whole episode.
I was also referred to The Royal London
Hospital in Whitechapel, where I came under
the care of Miss Frances Hughes and her
team. It was agreed that I should have the
surgery to take away all of the affected
part of my Oesophagus.
The Chemotherapy lasted for 6 weeks. It was
not pleasant but it was not quite as bad as
expected, and I remained reasonably well
throughout this time.
I was the admitted to The Royal London on 15th
April 2008, and had the operation on 16th
April. Everything had been explained to me
and I was totally relaxed throughout the
build up to the operation. As a Christian my
faith helped me greatly. My local Church was
a great support to us all over this period
of time in both practical and emotional
ways.
I came out of hospital after 10 days and
then spent a period of time recuperating at
home. I returned to work on a part time
basis at the beginning of September 2008 (I
am responsible for Children with Special
Educational Needs (SENCO) at Bishops Park
College in Clacton), and then started back
full time after the November half term.
My progress continues to be quite good,
although at times I do find it quite hard, I
still suffer some pain and need to be
careful not to overdo it. I cannot each as
much as I used to (not a bad thing – I lost
about 3 ½ stone over this period!!!!!!), and
I fill up very quickly when eating. It is
more a case now of ‘little and often’. Also
I do not absorb as much of my food intake
now, so at times energy levels drop.
However I cannot complain. The story has
been one of excellent medical care (one of
the sadnesses I have found is that so often
our health service is slated, yet I
experienced nothing but excellent care
throughout this whole episode. I wish that
side of the health service was reported much
more, and we all recognised what an
excellent service we have in this country,
that is totally free at the point of
delivery).
Finally I must pay tribute to my wife and
family who have stood by throughout all of
this. Melanie has been a tower of strength,
patiently supporting and helping me, often
in very difficult and sometimes very anxious
moments.
So there is a
lot to thank everyone for. I attribute the
good recovery I have made to each one of
them, and to my faith in God, who supported
and sustained us all during this time.
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10 years ago,
Brian Pearce from Hertfordshire was lying on a
beach in South Africa on holiday when he
realised that he became nauseous when lying on
his stomach. Thinking it was the
result of too much rich food and wine, he took
kolanticon from his chemist, but when he
returned for a third bottle, the chemist told
him very sternly to go to his doctor as he
either had an ulcer or some form of cancer.
His GP referred him for an endoscopy and a
tumour was found. Brian had his
oesophagus and part of his stomach removed at
Harefield hospital by surgeon Edward Townsend.
Brian said "Since
I had my cancer treated 10 years ago I have
had an angioplasty and two hips replaced, but
far more importantly I have seen and got to know
seven grand children, and have had the most
wonderful years with my wife and our children.
I am walking about five miles a day with our
spaniel when not playing golf, playing bridge,
or off on some venture or other. In short
life is pretty damn good.
Oh and the moral?
Well of course it is to catch it early and move
fast but I often wonder what would have happened
if I had purchased my “jollop” from off the
shelf in a super market and not from a
pharmacist? I suspect that I would
not be playing golf later today or any other
day; because ten tears ago oesophageal cancer
seemed not to be widely recognised.
So please don’t rely on luck and
if you have doubts get yourself to your GP p.d q
!!!"
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Dot Russell,
from Folkestone:
For many years
I suffered severe indigestion, heart burn
and visited my then GP many times, who
constantly prescribed gaviscon.
One evening in
2002 I went with my husband Bill for a meal
in Dover and at the beginning of the meal I
became violently ill, vomiting bile.
My husband rushed me to the
Royal Victoria Hospital in Folkestone to the
emergency doctor, who was very concerned
that my GP had not sent me for an “endoscopy
examination”. The endoscopy
showed that I had "Barrett’s
Oesophagus" (that means that the cells in my
oesophagus had changed and they might turn
into cancer) and because of some “maverick
Cells” it was later confirmed that I did
have cancer itself.
I had an operation to remove
my oesophagus that was successful, but it
was a very difficult time.
I cannot speak too highly of the National
Health Service. It has given me a remarkable
service and as for Simon Gibbs my surgeon
specialist now sadly residing in America and
Sue McCafferty from Macmillan Cancer Care, I
cannot find words to express my gratitude to
them for giving me my life.
The support
from my family particularly my daughter and
husband enabled me to find the strength to
survive. The flowers, cards and good
wishes from my numerous friends, gave me the
strength and courage to fight my battle.
To sum up, if
any person you know suffers constant, acute
indigestion, heartburn or similar. You
must visit your GP. An endoscopy is
the best way of finding out the underlying
cause, and I wish I had had one earlier.
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Rosana Hughes from
Greenford:
My husband had
gullet cancer 17 years ago, is still physically
well today, and is an uplifting example of
a positive outcome from early detection of
cancer of the oesophagus.
It all started in 1992 when he used to hiccup
after every meal. At first I told him to slow
down, even 'told him off' for eating too fast.
However, after a few days with the same
symptoms, and, by the way, this was the only
symptom of something abnormal, at my insistence
he went to the doctor. On the same day he was
sent to the hospital for an endoscopy where the
doctor discovered a quite large 'obstruction'
in the oesophagus. He was then operated the
following week at Harefield Hospital by Mr
Townsend. It was a long operation, the cut was
sideways, he was told by the consultant that
part of the oesophagus and part of the stomach
was removed. Bob never had chemotherapy as at
that time it was thought not necessary. From
then on and quite slowly he regained his
strength. He suffers mostly from refluxes but as
a whole he eats well and he has recently being
checked because he was complained of stomach
ache. It was discovered that he had stomach
bleeding caused by taking aspros daily. There
were no signs of anything else, no tumour and
the doctor congratulated him on the success of
his 1992 operation!
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50-year-old
Larry Rees from Finchley
was
diagnosed 4 weeks after his 50th birthday
after going to the doctor complaining of
food "catching" as he was swallowing.
He was diagnosed as having an
unusual/aggressive signet ring cell
adenocarcinoma that was thought to have
spread into other parts of his body, but,
after an operation to remove his oesophagus
he is now fit, well and back at work.
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Peter
Jones from Loughton: My case is
somewhat unusual in that I suffered from
achalasia, a swallowing problem that sometimes turns into
cancer. I was being monitored for
this reason, and Mr Robert Mason a top surgeon
at St Thomas's hospital, recommended that I have
my oesophagus removed because of the risk.
When the path lab looked at my oesophagus they
discovered that I did indeed have cancer, so it
was caught very early, I did not need any
chemotherapy, and I have been fairly well ever
since.
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